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no regrets

December 25, 2022

parts of my brain and my heart will always be in 2019, my last year of being ‘normal’ and able bodied. I’ll continue to grieve my past life

However, I am incredibly proud of the person I was pre-stroke: I married my best friend and childhood sweetheart – my first love, bonded and strong in our faith; I had a career I loved, established the most genuine relationships and a tribe so deep who helped us get through the most devastating time. I built myself to survive the worst; I hit many of my goals before the age of 31 which prepared me to be set for recovery in my home

I will always envy those who get to move on normally in life while I continue to struggle the rest of my days

Being disabled is harder than hard; and I”m not too sure yet why God decided this card for me. even as I type this blog post one-handed, I miss the ease of life I used to possess

and I don’t regret one second of the hard because it showed me the strength of our faith, love, and hope in what He can do for us, tested the love between my husband and I, showed us who our people are

I also wonder if this had not happened to me, would I have even inspired anyone at all?

If my story could be a source of strength to anyone struggling and my daughters that would be enough for me

It took me awhile to accept, but I do love the survivor that I am, the wife, and mother and friend that I am

In the spirit of this year coming to an end, I reflect on the leaps and bounds I have made this past year and I am so proud of myself and my little family for thriving under all the hardship, pressure and never giving up on each other, not crumbling through the difficult times, especially our resilient kids in their young age who have had to grow up faster in order to help their parents. I thank our God for giving us all the strength and everything we need and more. I look forward to continue to work towards even more recovery and God-willing, closer to a ‘normal’ life. I’ve completed all of my therapy appointments I had this year and am scheduled to continue through the end of January then will be discharged for a few months while my persistent physical therapist, Barb is working on getting me into vocational, transitional neuro rehab which is a 8 hours/day/5 days a week program who’s goal would be to get me back into the work force post brain-injury, even part-time or volunteer work. God-willing I’ll be in the program sometime next year as there is months waitlist, plus insurance issues. we are praying for this next step. Until then i’ll keep walking to strengthen my endurance. and I’ll trust in God’s plan for me and my family. if you’ve read this far, thank you from the bottom of my heart for being here.

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2 Years on the road

November 30, 2022

… to recovery. and counting. I didn’t mean to go 2 whole years before writing another post, but life just happens. I did write a draft blog update post in speech therapy last year, but didn’t get a chance to edit out all the mistakes, so I never posted it. so that one will just be for me. Over past two years I’ve been gaining a clearer understanding of what happened to me in 2020. I’ve been in my wheelchair quietly observing and getting accustomed to my new normal: life as a hemiplegic woman in my early 30s and I guess I will just talk about what it has been like.

therapy in the beginning of course was so painful, but I set a goal to get out of my wheelchair someday and knew I had to just endure and push through all the pain.

the equinovarus deformity or contraction in my left leg and left hamstring got so bad that I had very limited range of motion, so my PT encouraged me to get surgery to get my hamstring released and achilles tendon lengthened and I got this done on April 11th of this year. this was completely voluntary and my surgeon gave me no guarantees I would walk unassisted but I had a feeling it would make it a lot better so I decided to do it for my husband and girls. I figured it was worth a try instead of staying the exact same or stagnant. This was the first surgery I was completely aware and conscious for beforehand but I knew I would be okay because I had already gone through multiple brain surgeries already with God’s help; surgery went as smooth as I could have hoped, but the recovery was very rough. I was short casted at the ankle for 6 weeks plus put in a knee immobilizer and special chair to keep that leg elevated for those full 6 weeks; with the cast, I could not get it wet nor shower normally; it was the longest 6 weeks of my life. I spent my 33rd birthday in that horrible set up; cast removal day came and seemed to jump start my recovery all over again and I returned to PT with a left leg that had full range of motion and much better extension. I left off with the hemi-walker, but did so well on it that my PT said that I was going to try a cane. My initial reaction was disbelief and I felt really unbalanced my first time using it. Fast forward to now, I went from a 4 point cane, to 3, this past week of PT my therapist and I came to the conclusion that I no longer need my chair. An unexpected result of the leg surgery was no longer having intense pain or “tone” And she reduced me to 1-day a week of therapy because I am doing so well; she had me walk outside around the entire outpatient rehab building, even up a flight of stairs and she said I could go on our upcoming trip without using my chair.

All this to say I’m not all out of the woods. and life isn’t any ‘easier’ by any means. though I can walk via cane, I am still hemiplegic, so I use my good arm for the cane and cannot carry anything else as I walk and I still require an AFO (ankle-foot-orthosis) I am still a fall risk. I still bear most of my weight on my right side so it does get fatigued fairly quick, for longer walks I will still use my chair, it’s just not completely necessary for me to live and for that I am so grateful. I can do all of my favorite things in life sans wheelchair.

that is the mobility/physical update on my life

Cognitively, everything feels to be in tact. Thanks to the unfailing support of my family and friends, most especially my wonderful husband for always putting me first. I’m so lucky we met and fell in love so young, not to mention he’s the man of my dreams, no less and we have our two beautiful girls, which is already more than I could have asked for.

the one thing I struggle with is not knowing/never will know who I would be now if I had never had my strokes or lost my left side mobility, I wouldn’t have found out how strong I am, that’s for sure and I will always miss the old ‘able-bodied’ me and wonder who she would have been, but for now I am happy and proud of my strength and resilience

I have peace knowing my body probably had to have the strokes in order to deliver and save my baby; our 30-week miracle preemie baby stayed in for the perfect amount of time. Her doctor declared her at normal development at her 15-month appointment before the actual 2 years and she continues to grow and be our “eternal joy” by definition of her name Gilana literally means eternal joy šŸ™‚

I’m forever grateful to everyone who has reached out and visited me in the last 2 years; each of you have helped us get through the hardest of times

As positive as I strive to be at all times, I would be lying if I said everything was perfect; There’s still so much I miss about the old me.. my independence, my job etc

The thing about going through a traumatic experience and living to talk about it is it will stay with you forever, no matter how you come out of it and everything may seem okay, but it is also okay not to be okay.

People tell me a lot that I’m the ‘strongest’ person they know, but I still don’t know what that really means.

I’m not gonna lie, my mental health really suffered the first few years, not fully comprehending how or what happened to me. Missing so much of Gilana’s first year, put me in a depression where I cried a lot. like a lot. I struggled with feeling like only being half the mom I wanted to be, questioning if she would know I was her mom even though I couldn’t hold her with both arms.. I still struggle with it.

But the honest truth is that I would go through it all over again knowing I would still get her for the rest of my life.

I want to thank my family and best friends for sticking by me and loving me all the same despite my deficits.

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I survived life-threatening brain surgeries, multiple strokes and had a baby in a coma

November 30, 2020

and this is my story….

i don’t have complete memory of what happened so this is going to be the story as remembered by my amazing husband, Kit

on the morning of June14, 2020 we were in Las Vegas celebrating my nephew’s high school graduation

the morning ofSunday june 14, we had no special plans, but to spend time with family we were actually planning on driving back to AZ that day but God had a different plan that would change our lives forever…

At 28 weeks pregnant. around 3PM, i would take my firstborn Keluna to the potty then start randomly having excruciating pain in my head that I still remember to this day the cousins wanted to go out to the strip but my headache was so bad that I decided to stay back at the house while our cousins take luna with them

i instantly knew there was something seriously wrong with me This headache was like no other..my cousin, a nurse practitioner ran to get her blood pressure cuff to make sure it wasn’t crazy…. it read normal so I was relieved but my head was throbbing in pain I went to the bed and tried rolling indifferent positions; I call Kit to try and be comforted by him he runs into the room and I throw up and suddenly rolled off the bed, start having a seizure then stroke-like symptoms (grasping my left arm, shortness of breath, and in panic Kit calls 911 and an ambulance e comes to take me to the hospital after an initial CT scan, they discover that I had an aneurysm burst in my brain doctors then perform a cerebral angiogram to coil the aneurysm and to stop the bleeding neurosurgeon stops Kit to tell him one of my eyes was already dilated and if the other would have dilated, that was it- there would be no chance of survival. right before surgery they let kit and my cousins see me in ICU, believing thus was an end of life situation of what I went through: half don’t make it to the hospital, half and don’t make it to the operating table or come out at this point it was only a matter of time to get to the operating room, I Squeezed kit’s hand while he did everything he could to stay strong, After many hours prayers I came out responsive: able to squeeze kit’s hands, look at him and all good signs right then, my parents and my mothrt-in-law arrive just in time to see me after surgery. until we had to go home which was 3AM at this point i would the procedure went well and I get sent to another CT scan.. where doctors found more bleeding from after the first scan starting to build up pressure in my head next step: craniotomy they have to remove the right side of my skull to relieve pressure this was a life threatening-surgery– right then, the neurosurgeon says they need to keep my skull removed for the next couple weeks. and this is when I was officially on the road to recovery. It hurts my heart that , they asked if I have a will,my family was told to say their goodbyes.. The hardest for me to grasp that I wasn’t supposed to survive this, but byGod’s grace, here I am…I almost left my dear husband a widow and my girls without a mother I almost didn’t meet my Gilana baby but I’m so incredibly proud of my body for overcoming and keeping Gilana alive. Kit leaves around 7 PM, then gets calls to come back to the hospital. Gigi was showing signs of decel. and he needed to make a decision. Doctors wanted to c-section the baby. Kit says–yes and that “I’d rather save one than lose both!”

June 27 kit’s post read this: Giana Isabelle Maglunog was born at 30 weeks3 days on 6/26.15:32, 2.7 pounds 16.9 in a rollercoaster week to say the least earlier this week, right before stent surgery, I experienced a seizure which lead to more bleeding-in the bran and 2 strokes – one hemmoragic, one ischemic. not only that, another aneurysm formed on top of the original one doctors performed a coiling and a stent -and another craniotomy take out dead brain tissue-and place a pressure monitor(VP shunt) in my brain surgeries were successful, but now the waiting game me (and baby) were placed in a medically induced coma to monitor he week, baby baby has shown signs of distress for the first time-and needed to take action Fast forward to Friday, doctors wanted to c- section the babY at 30 weeks gestation, however right before the operation, I experienced a vasospasm and needed to have a procedure To expand the closing arteries to prevent a stroke, I was taken to the OR– and baby GIGI was born!

Post on JJuly 33, 2020: belle’s husband here for an update: this poster has been in 3 different rooms of the hospital in the span of 6 weeks. all of the staff who worked with and cared for belle during her time here loved seeing my beautiful wife in her element, along with the members of her family. they got to see a little glimpse of the patient they were caring for Today marks the last day this poster will be in the hospital because belle is getting transferred to a facility in PHOENIX!d ue to covid, I still cannot go visit her but at least we are one step closer to being home!as for Gigi she is also approved to go to a NICU in

phoenix and will be there tomorrow, as well!

keluna and I will finally be home! i know this is Gods perfect timing for us. still a LONG WAY to go of recovery forBelle and growing bigger for Gigi, Icannot thank my family enough for the hospitality hey have given my family the past 6 weeks. its been real, Vegas! see yo u in Phoenix! $#road torecovery

I cab’t pinpoint exactly when I realized and learned of everything that had happened to me, but imagine going on a trip and instead of going home, you’re in a coma and wake up in the hospital and jump right into inpatient neuro rehab because your left side no longer works. Kit tells me the whole story one night when he visited me and I could not believe what I heard truly traumatized. I could not sleep that night. I may havePTSD from it all I am home now, but still have an intense fear of having another stroke/aneurysm….

I would spend 5 weeks, 1110 days in the neuro rehab unit of the hospital. .the days are long and i am just waiting day to day t to be visited by my family and get discharged, i could hardly believe it when I got the news that I was being discharged on

October 3, and then even earlier onSEptember 30 because husband convinced them for itt o be during his fAll break. My husband was always pulling for me like that the whole time. He wanted me home. as much as I wanted to be home.

October 29 came, the day of family training when my family would learn the new way how to care for me being disabled. I would be going home in a wheelchair.

life now,., is so different I often ask my husband if he’s sure he wants to stay with me I worry he will feel trapped-or just want a normal life again because i’m so sure he never imagined his wife would become disabled,.but this whole thing has taught us that all we want is life together… in sickness and in health. with our children Thank you God for allowing me to stay alive and have a future with my children. because the alternative would be too sad

Kit and i have had about a thousand deep conversations about what would have happened had the story gone the other way… in the thick of it all kit cried to my family about not being sure if he gave me a good life or if i knew how much he loves me. But i can say with full confidence that the love kit has for me is boundless that even though Iā€™m not the same person I was before my injury he would never dream of leaving me! And for him i am truly thankful

I thank God every day that i’m still here. that I was blessed with an amazing husband who would literally saved my life. even in the saddest moment he never gave up hope.

it is our firm belief that our faith and trust in God is what made us come this far. our membership in the Church of Christ has not only saved us in this life, but also in the salvation of our souls PLEASE VISIT incmedia.org to learn more about our Church

If you’ve come this far, thank you for reading. Thank you God, our story doesn’t end here.

mwou;l

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